SD World is a list dedicated to providing a place where those who suffer from Scleroderma and other autoimmune problems may gather in a warm, friendly forum for an upbeat, open and free exchange of thoughts, ideas and information. We also offer a section of links for scleroderma medical, support, health or fun information.
About Us
This is our page. Here you can find out all about us. Well, not quite all about us.
Jo Frowde - SD World Webmaster.
In 2015 - 2016, Jo began restoring the coding for SD World to current coding standards and became it's webmaster as part of her role volunteering for the ISN.
After being diagnosed with scleroderma interstitial lung disease in 2009, Jo became involved as a volunteer with the ISN in 2010 and she is Assistant Webmaster for the ISN and ISN Sclero Forums Manager, ISN News Manager, ISN Hotline Support Specialist and ISN Chat Host. She very much enjoys her interesting and varied volunteer roles within the ISN.
Jo lives in the United Kingdom in the lovely county of West Sussex. As well as her participation in the ISN, Jo does like to keep as active as possible, despite two hip replacements and enjoys horse riding, going to the gym and walking her cocker spaniel with her long suffering husband. Jo's ISN profile is here.
In Loving Memory of Sylvia Finegan - November 29, 1953 - October 30, 2003.
Syl lived in Gallup, New Mexico. She was diagnosed with SD in 1997. She is survived by her husband of 30 years Bill and two sons, Jason and Matthew. Her passion was crafts. She loved beading, working with polymer clay, crocheting and making ornaments for the Christmas tree! The last couple of years they grew a vegetable garden and loved every minute of it.
In December 1998, three women, Syl, Judy, and Lynn, decided they wanted a friendly, happy place where people with scleroderma and other autoimmune diseases could come together and talk about the problems we all have living with scleroderma. Syl was here almost every day, doing whatever she could to help others. She had a wonderful sense of humor and shared so many funny stories with us. One night we were left in stitches because she had written the funniest eulogy I have ever heard. She was the kindest person I have ever known and will be terribly missed.
If you would like to read Syl's story, you can find it here on the International Scleroderma Network site.
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In Loving Memory of Judy Tarro.
Judy lived in the beautiful mountain community of Tehachapi, California. She was a fifty-plus year scleroderma survivor. Judy's career was in data entry, then computers, so she knows her way around a keyboard. On disability she spent her time with that keyboard and also scratch-building one-inch-scale miniatures (mostly furniture), and sculpting items with polymer clay to fill the doll house she also built. Judy always said, "So much to do, but not enough time!" And, her story can be found here.
Special Thanks
Special thanks go to Shelley Ensz for her support, advice and great web site ideas. Also to Don and Karol Alfera, and Linda and Joe Pecot for always being there...
Sherrill Knaggs, ISN Artist, created Syl's digital photo on this page.